It has been 5 months now since I have been listed. As I have mentioned before, I was told because of my blood type I was probably looking at a 2 year to 2 and a half year window for a transplant. Now that I have almost seen my way through that first half year, I am going to start counting down in quarters beginning next month. For now I am going to pat myself on the back for getting through these past few months without a lot trouble.
It hasn't been easy though. I am really starting to notice many changes in my body. I have gone up in weight and size and that bugs me sometimes. My stomach has swelled out a lot and I continue to rub it like its a new appendage. My psoriasis is much better due to the fact that I am taking Embrel shots and even though they hurt like hell I feel better. I still wrestle with my sleeping issues at night, but I am no longer afraid of the dark. I missed how that happened, but I noticed it last week when I reached over one night to turn off my nightlight and it occurred to me that I had been doing it for the past couple of weeks. Strangely enough I still grab the tiny led lights that fit in the palm in my hand and hold on to them or leave them next to my pillow from time to time.
But there are still the emotional things I deal with that I don't talk about. That's where this writing thing has come in handy. And I really feel a lot of pain these days. All the way to the bone. I will have to bring this up with the doctor.
So...I am happy that time has moved forward and the effects of this disease have not been as harsh on me as they might have been.