Friday, July 22, 2011

I'm alive

   I experienced my first serious spell of encephalopathy this week. I'm pretty sure I managed to scare my youngest. I was incoherent and nothing I was saying was making any sense at all. I had to have Aly call Lois at work and she came home to babysit. We almost went to the E.R. but I drank some lactulose, ate some food and took a nap. Eventually I started feeling better. This was the second time I had a big scare like this. The first was back in the beginning when I was terrified of throwing up, thinking that my varices would start bleeding again. I've had a couple hard weeks this month. My health seems to be changing a lot. I am tired all the time and I hope that I can hang in there at work.
   I am thankful for the emails and the comments I've received lately. But I am not always up to the task of writing and getting back to everyone when they stop by. My sincere thanks to all my visitors

Monday, July 11, 2011

Latest MELD

   I had my MELD done today. My score dropped from 20 to 19. As I've said before, Lois and I can pretty much tell whether my score has gone up or down by looking at the numbers. I usually take the train to the hospital, have my blood drawn and then go downtown and catch a movie. I later call the lab and get my numbers and call Lois so that she can run them through the MELD calculator. We both knew that it had dropped.
   I may have gone down a point, but I am still in the second category from the top. We are still waiting for my score to rise, but it is getting harder to get through each day. Some days are worse than others. I am holding up though and next month I will be listed for three years. It is hard to believe so much time has passed by since we found out that I was sick. The good thing is that I am still able to work.
   I don't have much else to say. After we returned from vacation I had a pretty hard time. I was extremely exhausted and the swelling in my feet was killing me. I wear a size 9 1/2 to 10 tennis shoe and I had to go and buy a size 13 just so that I could get something on my feet. Tomorrow I go back into clinic and once again the swelling has gone down and I won't have much to show the doctor. That's just funny. Kind of like them bringing Dallas back to air. Well...that is all.