I had my MELD done today. My score dropped from 20 to 19. As I've said before, Lois and I can pretty much tell whether my score has gone up or down by looking at the numbers. I usually take the train to the hospital, have my blood drawn and then go downtown and catch a movie. I later call the lab and get my numbers and call Lois so that she can run them through the MELD calculator. We both knew that it had dropped.
I may have gone down a point, but I am still in the second category from the top. We are still waiting for my score to rise, but it is getting harder to get through each day. Some days are worse than others. I am holding up though and next month I will be listed for three years. It is hard to believe so much time has passed by since we found out that I was sick. The good thing is that I am still able to work.
I don't have much else to say. After we returned from vacation I had a pretty hard time. I was extremely exhausted and the swelling in my feet was killing me. I wear a size 9 1/2 to 10 tennis shoe and I had to go and buy a size 13 just so that I could get something on my feet. Tomorrow I go back into clinic and once again the swelling has gone down and I won't have much to show the doctor. That's just funny. Kind of like them bringing Dallas back to air. Well...that is all.
I may have gone down a point, but I am still in the second category from the top. We are still waiting for my score to rise, but it is getting harder to get through each day. Some days are worse than others. I am holding up though and next month I will be listed for three years. It is hard to believe so much time has passed by since we found out that I was sick. The good thing is that I am still able to work.
I don't have much else to say. After we returned from vacation I had a pretty hard time. I was extremely exhausted and the swelling in my feet was killing me. I wear a size 9 1/2 to 10 tennis shoe and I had to go and buy a size 13 just so that I could get something on my feet. Tomorrow I go back into clinic and once again the swelling has gone down and I won't have much to show the doctor. That's just funny. Kind of like them bringing Dallas back to air. Well...that is all.
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Its somewhat normal yet frustrating i think for the MELD scores to fluctuate. 3 years is a long time, but your body must want to fight it if it has lasted out that long. Although it sucks, every day is a gift and I am glad to see that you are still getting the most out of your days.
ReplyDeleteoh Beaux - 3 years - what can you say? Like everyone one who is with you on this journey I wish things could be better - now! And don't your feet know that it makes you look silly if you said they were swollen and now they are not? I will continue keeping you and your family in my prayers. xo teri
ReplyDeleteYou are invited to follow my blog. Much love from your brother in Cristh.
ReplyDeleteGod Bless!
Takes photos of your foot when it swells so you can show Doctor.
ReplyDeleteLaoch,
ReplyDeleteWe did the picture thing a couple of different times and even though you could see the swelling, they still didn't do it justice.
Beaux,
ReplyDeleteThinking of you and hope you are feeling well. I just started on the triple therapy using Incivek and hope this third time will be a charm. I will keep sending good thoughts your way, hang in there! :)