Friday, June 5, 2009

What's new?

The last time I had my MELD score checked it was still eleven. On the scale of 6 to 40 that is relatively low. I continue to have shortness of breath despite the water pills I'm taking. But I weigh myself every so often at home and at work and I have dropped a couple of pounds. I went to see my dermatologist yesterday and we told him that we were going to have to stop taking the Enbrel due to our insurance not covering it. He said that he would see what he could do about continuing the treatment because it seemed important to keep me healthy and to keep my psorisis at bay. I was so looking forward to not receiving anymore shots.
I've been really exhausted these past few days and now I have a cold. Tired + having a cold = Miserable.
Now that the season has changed I've taken to riding the bike around the neighborhood. The other day I did 3 or 4 miles and I cramped up real bad later in the evening. I'm going to have to watch that. I was riding in low gear trying to work my muscles. I'm gonna have to kick it down a notch until I get used to it. The exercise bike in the corner of the living room just doesn't do it. My cramps have gotten a lot better though since I started taking the new medication.
We are still waiting to hear from Arizona about the adoption records. It has been a couple of weeks now. We are getting anxious. We are hoping that this is a good sign; that maybe the waiting is because they are looking. We haven't really thought of any other options yet and are waiting to see what happens with our last petition to the other court. After that, if there is no news then we will try something else.
Sometimes I wonder what is worse. Waiting to get sick or waiting on news from the court. Or in this case the lack of news.


  1. I find the exercise bikes to be decent but not as good as the real thing. I think it makes a big difference though as to the model.

    Good luck on your search.

  2. Beaux. Thanks to you and Lois for stopping by my blog. It gave me a smile.....I am thinking of you and sending up prayers of needs met asap....needs...met.

    Your new banner is lovely and I think artistic!
    Hugs to you and your family

  3. Laoch, I think I really need a different seat put on my bike. It is a fairly older Omni style which I suspect doesn't perform like it used to.

    Linda, I like the banner as well. I hope all is well. Sorry for the lack of visits. May was very busy this year and I've been very tired these days.