Wednesday, November 16, 2011

Current MELD

   The other day I woke up feeling pretty sick. It lingered all day long. Luckily they make nausea pills. It got me thinking about my transplant region and how my wife read that they normally don't start transplanting until you've reached a MELD of 28. That usually means you're probably sick enough to be in the hospital. 
   I am still a long ways off according to those figures. Right now there are only 3 people listed in the highest category and 9 in mine. I try not to think about this, but with transplant getting closer and my MELD rising, it is hard to put aside. Plus having these aches and pains are a constant reminder. I continue to get the shakes and I'm constantly tired. The encephalopathy is happening more often and I fear the worst. Losing my mind sucks. I'm beginning to wonder how much I got left in me. It is starting to show in my work.
   In any regard, just around the corner there's a rainbow in the sky. Hopefully I can maintain my current MELD of 22 or at least keep it rising.
   That is all.

5 comments:

  1. I'm glad your MELD is holding, but hate to know of your continued decline. I'm astounded to know that you'll have to reach 28 to get a transplant. I've ready many about many studies where researchers repeatedly find that the healthier the transplant patient, the better the outcome.

    The docs have you on meds to help you rid your body of the ammonia that causes the encephalopathy, right? I know it's no fun to take but hopefully it can help you control that condition.

    You're in my prayers.

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  2. Thinking of you and your precious family this evening. I've not been by in a while...but I think of you often and hold you in my prayers.
    May you be blessed with kindness.
    May you be blessed with compassion.
    May you be blessed with strength.
    May you be blessed with healing.
    May you be blessed with peace.

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  3. Laura said it best...Sending you blessings...

    Thanksgiving blessings and so much more. xo teri

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  4. I Love you brother. You are always in my prayers. I know that I know God is in the middle of your circumstance. Keep the Faith Bro. You are a walking Miracle for sure. I wish I could talk the Lord into fixing you yesterday.
    We have been very good friends for over 25 yrs. Lots of miles together, married my sis & have 2 beautiful girls. What a blessing!
    Iove you Bro, Dave

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