Wednesday, January 26, 2011

Today's Update

   Well I heard from my coordinator and my CT scan shows that there has been no change in the blood clot in my portal vein. It remains the same after months of being on coumadin. Her understanding is that it is probably unlikely that they can do a TIPS procedure with a partially blocked vein. They can't afford the risk of moving it. Tomorrow they are having a board meeting with the doctors and they'll discuss my options. The good news is that there was no sign of anything else. No spots indicating tumors or cancer stuff.
   It is still a lousy situation though. Somehow we are going to have to resolve this before I have a blood vessel burst. The beta blocker will only help for a while. Lois is thinking that they might end up hospitalizing me and treating me with heparin in order to get rid of it. I guess we'll just have to wait and see. In the meantime I think we should have a pool on the call. That might be fun.
   Good night all.


  1. Ugh, I had a blot clot stuck in a varicose vein in my leg for about 6 months. Very lame as my teenaged cousins would say.

  2. Oooh - my brow is furrowed. I'm praying. I need to start looking at healthful living options that I can add to my world (got my biopsy results yesterday and there was much suckage in the report). I'll also keep my eyes open for anything that might be helpful for you. I'm not thinking St. John's Wort or something - our docs aren't gonna go for it. Aromatherapy, meditation, healthful food, even some grandma remedies are going to be on my radar. Gotta put it out to the universe and invite goodness back in the door. All the best to you and yours.

  3. On the other hand: no cancer! That's something, yeah?

  4. Well I hope the board meeting is going/went well and they come up with something to clear up this clot. :-/ xoxo

  5. I am not sure how things work, but Heparin can be given out patient here.
    This may even work out in your favor, in that, it might move you slightly up the queue in regards to transplant.

    Thinking of you

  6. How did I not know about this blog? Where have I been?

    Praying for you, my friend.