Wednesday, August 18, 2010

New MELD Score

I had new labs drawn on Monday. Ever since my MELD score went up three months ago I have anxiously been waiting for my next doctor appointment. For three months I have been walking around on pins and needles waiting for this appointment. Actually it isn't so much about the doctor visit as it is having my MELD score checked again. I usually have my labs sent to me by mail and I use the UNOS MELD calculator to check my new labs so as not to bother my coordinator. If I don't, then I am on the phone 3 days later and I quickly become a nuisance until I track down someone who can help me.
Anyhow, I just received my labs in the mail and I am now at 21. I definitely am moving up the ladder.
Here is the MELD range:

Lab Test Frequency

    * MELD score greater than or equal to 25; Labs needed every 7 days
      * MELD score 24-19; Labs needed every 30 days
      * MELD score 18-11; Labs needed every 90 days
      * MELD score less than or equal to 10; Labs needed every year

Meanwhile I am very tired. I find myself falling asleep more often during my days off. I have also noticed that I am running out of breath a lot faster than I used to. I think I am just physically weak.
Posting has also been hard to do. I don't seem to have it in me anymore. I have been trying to keep the photo journal going though, but I haven't had anything to post for the past couple of days because I've been sleeping. It's kind of hard to take pictures with your head buried in a pillow.
So there it is. Good news depending on how you look at it. I am happy about it.

Lately I have been following some blogs in the liver community of some people who are not doing as well as I am. They are a lot sicker than I am and I count my blessings that I am doing so well. I hope these people don't have to wait much longer and that they all receive their transplants soon. My thoughts and prayers go out to each of them.


  1. For some reason my comments feature was changed inside the new post editor. I don't know how that happened but there it is. Weird. Sorry if I missed any comments.

  2. I have been thinking about you- and wondering how you were. Thanks for letting us know...
    It would be nice if a photograph a day would keep the Doctors away-but alas it sounds like you are getting closer... Blessings - teri

  3. I can't believe that you are still able to go to work. I admire your strength.

  4. I agree with are amazingly strong and completely courageous. Let that phone ring soon with a liver donation and date for transplant!

  5. I am happy for whatever brings you closer to a better quality of life. I came by to check for your meld score and if higher means moving this process along, then I too, am happy. I admire your ability to continue fighting while still doing more than most people could do while in your position! You are a fighter, Beaux.


  6. Beaux, you have been on my mind a lot and I have been offering up many prayers for you! Much love, Tillie

  7. thinking of you...hoping you are feeling ok.