Tuesday, March 9, 2010


Not much is happening. Ever since my med's got changed I have been doing better. The cramps are still noticeable, but they have subsided somewhat. I feel good in general though, if you don't count all the bathroom trips and the getting tired. Even the tiredness is a little better. It usually catches up to me over the weekend.
The one thing that hasn't changed is my breathing. It takes very little to lose my breath. I walked about a block the other day and I was huffing and puffing. I still don't understand what is causing this and I don't understand why I keep losing my voice while I'm talking. It frustrates me that my doctors don't know why. It seems like at least one of the doctors would be familiar with such a symptom as this. Maybe it's time I see my family doctor and see what he has to say.
I am also going to start back on the pegylated interferon and ribavirin program that I did a few years ago. I am kind of anxious and nervous, but mostly I would just like to get started on it. The doctors are working on new protocols for the Hep-C treatment and then they will schedule an appointment for me.
That is all.


  1. Hey Beaux
    I was glad to see you update and to know that you are feeling some .

    All is well here/ I am happily waiting for Spring!

  2. Hey, at least 'somewhat better' is still better! Glad to hear from you. Maybe you should see the family doc and see what he thinks as far as the shortness of breath. It can't hurt. Well, except for paying for it and having to sit in the waiting room!

  3. Long ago I was on a treatment cycle of interferon for a horrific lung virus that I caught while visiting my mother in a hospital. It was truly unpleasant but it did, after making me feel like my body was on fire, clear up my life threatening illness.

  4. The shortness of breath could possibly be Ascites if you have a distended abdo. This is when fluid leaks into your abdo. It can cause shortness of breath, I think because it puts more pressure on your diaphragm and lungs making them less effective. But I wouldnt have thought it would cause any problems with your voice? Unless you are having reflux issues which can cause voice changes.

    I am glad to hear you are feeling a little better. Hang in there, as bad as it sounds you do adapt to the lack of energy.


  5. I'm glad you're feeling somewhat better. I meant to leave the URL to the blog entry I wrote about my sister-in-law back in 2005 before her double (kidney and liver) transplant in case you want to go check it out.

  6. Beaux,

    I am glad I found your blog. I haven't seen you and the family in soo long. I am just learning of all you guys have been through. I am working my way through your older posts and up to the current ones. Keep up the effort you are doing. I too will add you and the family to my prayers.

  7. I just dropped by to wish you happy Easter weekend.

  8. Agreed. Somewhat better is still an improvement.