Thursday, July 1, 2010

I Have a Hole in My Side

I had an appointment today with my dermatologist. The enbrel seems to be working like it's supposed to. I also had a large lump on my side that I've been waiting to get checked. In the past two weeks it about doubled or tripled in size and has been hurting like hell. It turned out to be a big cyst. I figured the doctor would probably drain it and maybe send a piece of it away to be checked. That is exactly what he did. Now I have to wait until next week until I hear something. I hate waiting. He seemed pretty confident that there wasn't anything unusual about it, but he wanted to be sure.
There isn't much else happening. I don't have my next transplant appointment or labs for another month. I am starting to get anxious about that.
I have had a lot of bloody noses happening lately. The good thing is that they don't last. And I am having a lot of bathroom issues which tend to give me stomach aches. That is the downfall of taking so many diuretics. Plus I am still having trouble with losing my breath and my voice. It doesn't take much for me to get winded.
Some days I feel like I'm spiraling and I feel like I am getting worse. I just need to remind myself that I need to be patient and continue to wait. I just wish I didn't have this big hole in my side while I do it.


  1. you are in my thoughts - while you wait with a hole in your side...

  2. Waiting with you. Good thing the cyst was just a cyst. Take it easy, take it slow. *big hug*

  3. It's horrible, isn't it? I remember well the days of waiting. And while I wasn't the patient, my husband was, it was still very scary and very frustrating. And the nosebleeds....his got so bad that he was reluctant to go out in public for fear of one starting at any moment. He didn't have to wait as long as you have, but only because his disease progressed much faster. He went from seemingly healthly to near death in about 18 months. But the transplant turned things around immediately. The wait was worth it. Hang in there.....your time will come.

    Linda, Wichita

  4. Beaux, I hope the cyst (or what is left of it) heals quickly. You have been very patient through all these changes and discomforts your body has been through. Like Linda said in a previous comment- the wait is worth it.

    Continue looking toward the future while enjoying today as best you can, friend.

  5. bbfranson@mac.comJuly 16, 2010 at 11:12 PM

    It has been two years since Scott's transplant and he is doing great, but I remember vividly the discouragement and discomforts and the wondering if it would really happen in time to save his life. It's a tough wait, but well worth it. God bless.