Showing posts with label vacation. Show all posts
Showing posts with label vacation. Show all posts

Monday, July 11, 2011

Latest MELD

   I had my MELD done today. My score dropped from 20 to 19. As I've said before, Lois and I can pretty much tell whether my score has gone up or down by looking at the numbers. I usually take the train to the hospital, have my blood drawn and then go downtown and catch a movie. I later call the lab and get my numbers and call Lois so that she can run them through the MELD calculator. We both knew that it had dropped.
   I may have gone down a point, but I am still in the second category from the top. We are still waiting for my score to rise, but it is getting harder to get through each day. Some days are worse than others. I am holding up though and next month I will be listed for three years. It is hard to believe so much time has passed by since we found out that I was sick. The good thing is that I am still able to work.
   I don't have much else to say. After we returned from vacation I had a pretty hard time. I was extremely exhausted and the swelling in my feet was killing me. I wear a size 9 1/2 to 10 tennis shoe and I had to go and buy a size 13 just so that I could get something on my feet. Tomorrow I go back into clinic and once again the swelling has gone down and I won't have much to show the doctor. That's just funny. Kind of like them bringing Dallas back to air. Well...that is all.

Wednesday, May 25, 2011

Sherwood Forest

   Today I have felt nothing but utter exhaustion. Everything hurts. My skins aches from the psoriasis and I am so tired. Even though I have increased the medicine I use for encephalopathy, it doesn't seem to do a lot for me anymore. I am going to have to talk to my coordinator about this.
   Lois and I have arranged to take some time off. We decided we are going to the Redwoods this Summer. It is a little far from home, but my score is only 17 and I suspect it will be a while before it goes back up to where it once was. I get it checked in the second week of June, perhaps there will be a slight increase. I'm guessing it will be safe enough for me to travel in the meanwhile.
   I think the Redwoods will be nice to see this time of year. I have never been there and don't even know where to start. We've decided Eureka will be as good a place as any, and the ocean is close by. The girls will enjoy that. I know that Lois and I are ready for a break. Maybe some fresh air and some time off will do us all some good.